For Parents ​of Disabled Children, School Mask Wars Are Particularly Wrenching

FRANKLIN, Tenn. — Five years ago, Kim Hart’s son underwent an open-heart surgery that got him healthy enough for the family to move from Cincinnati to this quiet suburb of Nashville. Her son has Down syndrome and autism, and she liked that Williamson County had a reputation for caring neighbors and safe schools.

But every day for the past month, she has wondered whether she made a mistake.

It was here that an explosive debate over masking in schools — one of the most effective strategies for keeping students learning in person safely during the pandemic — made the county a poster child for divisions over coronavirus safety measures. A video clip of a county school board meeting last month, showing protesters heckling and threatening medical professionals and parents who supported a universal mask mandate as they left the meeting, drew national attention and a rebuke from President Biden.

As cases in Tennessee surged — the state was leading the nation in new infections per capita earlier this month — many residents of the predominantly white, wealthy county were left despondent that a piece of fabric had become a political statement.

“It’s very dystopian,” Ms. Hart said. “I’m used to arguing with a district to get my kid what he needs. I’m not used to my neighbors screaming at a school board meeting over a mandate that protects everybody.”

At the school board’s August meeting, parents who objected to the mandate pleaded with board members to allow them to be the arbiters of their children’s health decisions. Many said they believed that forcing children to wear masks negatively affected their emotional and physical health; some said they did not believe masks had been proven to work at all.

One parent, Leigh-Allyn Baker, a self-described “California refugee,” said she gave up a Hollywood career “for freedom, and to come to this friendly place of Tennessee and be greeted with open arms.”

Holding up copies of the Constitution, the Declaration of Independence, the Bill of Rights, the Federalist Papers and the Bible, Ms. Baker told the board: “These guarantee my freedom, and yours, and my children’s to breathe oxygen.”

The opposition to masks has been particularly crushing for parents like Ms. Hart, who see in-person schooling as a lifeline for their children with disabilities. Those students have been among the most underserved during the pandemic but also sometimes face a higher probability that going to school could make them severely ill.

Tennessee is one of seven states that the federal Education Department is investigating to determine whether governors’ orders allowing families to flout school mask mandates discriminate against students with disabilities by restricting their access to education.

Even though many local school boards, including Williamson County’s, have voted to require universal masking, an executive order issued by Gov. Bill Lee, a Republican, allows parents to send their children to school maskless, no questions asked. At the high school Ms. Hart’s son attends, data published weekly by the district shows that more than 30 percent of parents have formally opted out, a percentage that mirrors the district’s overall.

“We’ve always known that not everybody really cares about our children, but it is in our face right now — that it’s not worth you asking your child to wear a mask, so my child can be safe,” said Ms. Hart, who is a researcher and a trained epidemiologist. “That is the scar that I will carry from the pandemic, this playing out in my face over and over and over again.”

Parents of special education students in two Tennessee counties covering the eastern and western parts of the state have sued to block the governor’s order; one lawsuit has succeeded. A third, covering Williamson County, had a hearing before a judge this week.

In the most recent complaint, three lawyers argued that the governor, the Williamson County school board and a carve-out district within the county called the Franklin Special School District, are violating the rights of special education students by allowing parents to opt their children out of the mandate.

The suit was filed on behalf of a student with Down syndrome and another with Type 1 diabetes, but seeks protections for all “similarly situated” students. “Defendants’ actions have pitted children against children, while placing the health and safety of medically vulnerable children with disabilities in danger,” the complaint said.

A spokeswoman for the governor did not respond to several requests for comment.

The federal scrutiny and legal challenges were welcome news to Becky Peterson, whose 16-year-old son has a rare chromosomal disorder called Dup15q syndrome, as well as autism and epilepsy. At the outset of the pandemic, it seemed that all parents understood the value of the “free appropriate public education” that federal law guarantees special-needs children.

“There was somewhat of a level playing field because we were all in the same boat,” she said. “As this has worn on, we’re all in the pandemic, but our boats look very different.”

Last fall, her son contracted the coronavirus at school — and that was when there was a mask mandate with no loopholes. Ms. Peterson, a professor, said her son’s bout with the virus was distressing, but not as much as the idea of keeping him home from his school, where more than 37 percent of students are not wearing masks.

The gregarious teenager’s communication is limited, but on a recent day he gave hugs and fist bumps as he got off the school bus. One day during remote learning last year, he hugged his computer when his teacher appeared on the screen.

Every morning, Ms. Hart makes excruciating calculations about the risks of sending her nonverbal 18-year-old son to school. He still has residual complications from the congenital heart defect that his surgery sought to correct. And while he recently got the coronavirus vaccine, she worries about breakthrough cases — as a child, he got the chickenpox despite being vaccinated against it.

Like other parents of special education students, Ms. Peterson and Ms. Hart also have, between them, hundreds of other reasons to send their children to school: the hours of instruction and services lost to the pandemic, which the district is supposed to make up this year.

This week, the school boards of both local districts voted to extend their mask mandates until January. The governor’s opt-out order expires on Oct. 5; he has not indicated whether he plans to renew it. The judge overseeing the Williamson County lawsuit ordered the state to notify the court of its intentions by Oct. 1.

In Williamson County, this week’s board meeting was much more civil than the one in August, but just as divided.

“All mandates say that I don’t get to choose, but the ruling class does,” Shelby Rollins, a parent who opposes masks, told the board.

Ava Martin, who identified herself as a junior at Independence High School, which has a nearly 40 percent opt-out rate, implored the board to keep the mask mandate. “There’s many people that find masks a violation of their rights,” she said, “but I say it’s a greater violation to ignore those who need us to help them.”

District officials acknowledged that the percentage of students not wearing masks was most likely much higher than the roughly 30 percent formally opting out. But they maintained that more students were wearing them than before, and that coronavirus positivity rates and quarantine cases were dropping.

Understand Vaccine and Mask Mandates in the U.S.

    • Vaccine rules. On Aug. 23, the Food and Drug Administration granted full approval to Pfizer-BioNTech’s coronavirus vaccine for people 16 and up, paving the way for an increase in mandates in both the public and private sectors. Private companies have been increasingly mandating vaccines for employees. Such mandates are legally allowed and have been upheld in court challenges.
    • Mask rules. The Centers for Disease Control and Prevention in July recommended that all Americans, regardless of vaccination status, wear masks in indoor public places within areas experiencing outbreaks, a reversal of the guidance it offered in May. See where the C.D.C. guidance would apply, and where states have instituted their own mask policies. The battle over masks has become contentious in some states, with some local leaders defying state bans.
    • College and universities. More than 400 colleges and universities are requiring students to be vaccinated against Covid-19. Almost all are in states that voted for President Biden.
    • Schools. Both California and New York City have introduced vaccine mandates for education staff. A survey released in August found that many American parents of school-age children are opposed to mandated vaccines for students, but were more supportive of mask mandates for students, teachers and staff members who do not have their shots.  
    • Hospitals and medical centers. Many hospitals and major health systems are requiring employees to get a Covid-19 vaccine, citing rising caseloads fueled by the Delta variant and stubbornly low vaccination rates in their communities, even within their work force.
    • New York City. Proof of vaccination is required of workers and customers for indoor dining, gyms, performances and other indoor situations, although enforcement does not begin until Sept. 13. Teachers and other education workers in the city’s vast school system will need to have at least one vaccine dose by Sept. 27, without the option of weekly testing. City hospital workers must also get a vaccine or be subjected to weekly testing. Similar rules are in place for New York State employees.
    • At the federal level. The Pentagon announced that it would seek to make coronavirus vaccinations mandatory for the country’s 1.3 million active-duty troops “no later” than the middle of September. President Biden announced that all civilian federal employees would have to be vaccinated against the coronavirus or submit to regular testing, social distancing, mask requirements and restrictions on most travel.

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